AN OBSERVATIONAL CROSS-SECTIONAL STUDY ON PARTICIPANTS AND PUBLIC INVOLVEMENT IN SEARCHING ASSISTIVE DEVICES FOR MOBILITY OF HOME CARE USERS
Self-Help Devices. Home Care Services. Atención Primaria de Salud
Home care comprehend a multidisciplinary team health care combined with formal or informal caregivers for people with stable, chronic and aggravated conditions. Few studies have explored mobility strategies used by home care users. Hence, the present study aimed to explore limits and possibilities in proposing user-centered technological solutions on the West Health Region of Distrito Federal. We designed a crosssectional observational study, using visits to home care patients in this region. Among the 95 current registrations in 2018, we successfully scheduled 49 visits, mainly in the urban centers of Ceilândia and Brazlândia. The sample had a higher prevalence of male and married adults that were assisted by informal caregivers. Altogether, we recorded a total of 142 disease codes, where diseases of the circulatory system combined with head, neck and lower limbs pain prevailed. WHODAS evaluation revealed a moderate general disability score (25 to 49%), although with a significant aggravation of the mobility (80%) and improvement in the interpersonal relationships (20%). Among the Assistive Technology devices in use, those used to assist daily life activities and mobility prevailed, composing almost half of the devices identified during the visits. The perception of the patients provided valuable possibilities, limitations and requirements for improving mobility devices– inspiring the conception of ideas and the improvement of existing solutions, contributing to technological innovation. Finally, we concluded that the lack of device maintenance facilities, individual and personalized adjustments and adaptations, as well as environmental barriers and difficulties in acquiring technologies were limitations. The creation or acquisition of devices for transferring and changing positions in bed, along with adaptations and personalized adjustments in existing devices, provided subsidies and possibilities revealed by the perception of the home care user.