Banca de DEFESA: Iara Vieira Ramos

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
STUDENT : Iara Vieira Ramos
DATE: 11/12/2023
TIME: 08:30
LOCAL: Zoom
TITLE:

Children with disabilities, caregivers, healthcare professional, early intervention

KEY WORDS:

children with disabilities, caregivers, healthcare professional, early intervention

PAGES: 100
BIG AREA: Ciências da Saúde
AREA: Fisioterapia e Terapia Ocupacional
SUMMARY:

INTRODUCTION: One of the approaches of Early Intervention (EI) is called Family-Centered Care (FCC). In this approach, healthcare professionals guide the programs and work in partnership with caregivers to support and guide the motor and neurobehavioral development of children, to enhance their capabilities. In FCC, the strengths and needs of all caregivers are considered. However, there is a need to understand the involvement and perception of caregivers and healthcare professionals regarding early intervention services (EI) in Brazil. RATIONALE: Two studies were conducted. In Study 1, we proposed a scoping review protocol to identify evidence regarding family perceptions of early intervention services with a focus on FCC, with an emphasis on those receiving physical therapy and occupational therapy. As for the rationale of Study 2, we recognized the need to characterize the services provided in Brazil from the perspective of caregivers of children with motor developmental delays and healthcare professionals, in order to seek the highest level of support for caregivers and improved working conditions for professionals. OBJECTIVES: Study 1) To identify evidence regarding the perception of families of children at risk of motor developmental delay in relation to early intervention services with a focus on the FCC approach. Study 2) To assess caregivers' perception of the early intervention services received and healthcare professionals' perception of the early intervention services provided through structured questionnaires. METHODS: Study 1) This study will employ the methodology for scoping reviews, as stated by JBI. This scoping review protocol will use the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMAScR) checklist for reporting this study. This scoping review protocol will be registered on the Open Science Framework Register. Studies based on the PECOT strategy (P: population/patient; E: exposure; C: comparison of exposure; O: outcome; T: time) will be included. Specifically, P: children of both sexes at risk of motor developmental delay; E: children receiving care with the FCC approach; C: compared or not compared with another type of intervention; O: family perception of FCC care; T: children aged 3 months to 4 years. Studies that only evaluated the effect of interventions and sought the opinion of families regarding the outcome achieved, as well as studies that sought family perception in areas other than motor development, systematic reviews, abstracts from scientific events, and unpublished documents on scientific evidence platforms will be excluded. Study 2) The study design is cross-sectional, using a survey approach (online questionnaire), and it was approved by the Ethics Committee of the University of Brasília (Approval Number: 63169122.0.0000.8093). This study included the participation of caregivers of children enrolled in EI programs (children aged between 3 months and 4 years) and healthcare professionals who have been working in EI programs in Brazil for at least 3 months. Both caregivers and professionals responded to an online questionnaire developed using Qualtrics software. Both questionnaires, for caregivers and professionals, consisted of multiple-choice questions. The caregiver questionnaire included questions related to the characteristics of the child and caregivers, caregivers' perceptions of the services received, and guidance on activities in the home environment. The questionnaire available to professionals contained questions about their professional background, professionals' perceptions of family involvement in EI and the services provided, as well as sociodemographic information. Descriptive analysis was used for data analysis. PRELIMINARY RESULTS: Study 1) This scoping review protocol aims to identify available evidence regarding family perceptions of early intervention services with a focus on FCC and synthesize knowledge on the topic. Study 2) Regarding the caregivers' questionnaire, 22 valid questionnaires were considered (61.0%). Mothers (n=19; 86.4%) were the majority of respondents, and most of them were the primary caregivers (n=18; 81.8%). In general, the children are being cared for by a multidisciplinary team (n=17; 77.3%), with the majority of caregivers reporting physiotherapists. Caregivers reported having the opportunity to mention the child's developmental needs (n=19; 86.36%), participate with professionals in setting goals (n=16; 72.70%), and expressed satisfaction with the services received (n=19; 86.40%). They received guidance for athome activities (n=18; 81.81%) and carried them out (n=15; 68.2%). Professionals were supportive when caregivers reported difficulties in performing at-home activities (n=20; 90.90%).As for the healthcare professionals' questionnaire, 22 healthcare professionals participated in the study (female: n=20; 90.9%). Most of them were physiotherapists (n=14; 63.6%), while others were speech therapists (n=3; 13.6%), occupational therapists (n=2; 9.1%), psychologists/educational psychologists (n=2, 9.1%), and one nurse (n=1; 4.5%). The majority worked in a multiprofessional team (n=19; 86.4%). Twelve participants (54.5%) had less than 10 years of experience, and nine (40.9%) had more than 10 years of experience in EI. Most respondents stated that they discuss therapeutic goals with the family (n=21; 95.5%) and consider the family's needs when establishing intervention goals ("always": n=16; 72.7%; and "most of the time": n=5; 22.7%). Concerning family involvement, some professionals responded that most families wait in the waiting room until the end of the session (n=8; 36.4%) during EI care; others reported that families observe the session from the side (n=8; 36.4%), or actively participate in the session (n=6, 27.3%). More than half of the professionals reported that only half of the families they serve (n=12; 54.5%) are interested in receiving and following guidance in the home environment. Additionally, professionals reported having favorable conditions to provide appropriate care to children and their families (n=18; 81.8%) and being satisfied with their work environment (n=20; 90.9%).

COMMITTEE MEMBERS:
Presidente - ***.203.248-** - ANDREA BARALDI CUNHA - UnB
Externa à Instituição - CIBELLE KAYENNE MARTINS ROBERTO FORMIGA - UEG
Externa à Instituição - ELOISA TUDELLA - UFSCAR
Interno - 1947805 - JOSEVAN CERQUEIRA LEAL