“ CARE FOR ADULTS WITH DISABILITIES IN INSTITUTIONAL CARE SERVICES: OFFER, MANAGEMENT AND TRAJECTORIES. ”
“ care; people with disabilities; institutional care; social support; public health. _”
“The stories of people with disabilities are marked by processes of exclusion, abandonment and lack of protection. From social life to educational processes, from access to cities and buildings to the enjoyment of art and culture, people with disabilities have been excluded from social life throughout the development processes of societies. On the one hand, it is possible to visualize a set of evidences that demonstrate how exclusion can be verified based on the different barriers experienced by this population. Barriers hinder or prevent the full life of people with disabilities and their real inclusion in collective spaces, such as school, work, etc. For this contingent of the population, several scientific studies have been built or are in progress, as well as public policies have been implemented with greater or lesser success. On the other hand, there is a significant contingent of people with disabilities who live in even more complex situations of exclusion. These are people with disabilities in institutional care or who live in long-term institutions. These subjects, due to the breakdown of social and family relationships, no longer have a community protection network that prevents them from institutionalization. Thus, they need even more refined looks, both in terms of research and public policy actions. This thesis will have a quantitative and qualitative approach, with the objective of understanding the care offered to disabled adults who live in institutional care services. To infer their histories and trajectories until their arrival and permanence in these institutional reception services, as well as if they have a care network through the intersectoriality of the SUS and SUAS systems, as well as if they have access. Its specific objectives are: 1. Mapping institutional care services in Brazil, based on the 2020 SUAS Census; 2. To analyze the management of institutional care services in Brazil regarding the care offered to disabled adults; 3. Describe the trajectory of adults with disabilities who live in institutional shelter services in Brazil; 4. Understand the factors that promote or prevent the institutionalization of people with disabilities in Brazil; 5. Describe the intersectoriality developed between SUAS and SUS for the care of institutionalized people with disabilities in Brazil. It was based on the hypothesis that adults with disabilities are welcomed as children and continue with no prospect of leaving these services, as well as there is no record or memories of their trajectories before the reception, and that there is always extensive displacement to various institutions throughout life. life. Therefore, they need even more refined looks, both in terms of research and public policy actions. Thus, this thesis seeks to contribute to the understanding of the care of people with adult disabilities who live in these institutions and to guarantee rights and gaps, emphasizing the importance of deinstitutionalization, to restore the autonomy and social inclusion of people with disabilities , thus, will have repercussions on the expansion of social protection and this offer, causing a direct impact on PWDs, which have a significant number of institutionally sheltered people. Initially, it was already concluded that the supply of shelter institutions in Brazil is disposed in an unequal way, so it is necessary to build and strengthen the sectoriality of the unified health and social assistance systems, since the results show that the majority are nongovernmental institutions and the edge of the capitals